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Episode 2
Flaminia Macchia is the Senior Patient Partnership Director at Roche and former Executive Director of Rare Diseases International and a leading global advocate in patients’ rights. Flaminia joins host, Kim Thiboldeaux, to discuss why equity in rare disease is particularly challenging, issues that are exacerbated in the developing world, and the impetus behind UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease and their Families. Flaminia explains the UN model of “Leave No One Behind” and the importance of strengthening healthcare systems to respond better to needs of rare disease patients.